Families who receive a spina bifida diagnosis are frequently given discouraging advice about their baby's future, with some even being told their child might face a poor quality of life and encouraged to consider termination. As a result, the termination rate for spina bifida stands at around 66%.
Families in our community have demonstrated incredible determination and strength in advocating for their children. We, as a supportive network, are committed to offering essential resources and encouragement to these brave and resourceful individuals.
Our organization is powered by volunteers with no paid employees. Donations support awareness and helping spina bifida families in need.